Initiative in development. Programme period 2027–2031; all figures shown are targets, not current results.

Methodology · Participant Rights

Informed Consent and Participant Choice

Consent is a clear, documented choice about recording, publication, attribution, and future use of material.

At a glance

Why this guide matters

Participants should understand the project's purpose and available restrictions before recording. Consent is stored securely and remains linked to the material.

Material status

This is an editorial guide for the initiative’s development version. It explains an approach and does not replace professional medical, legal or financial advice.

Blank consent form, sealed envelope, and unmarked choice cards on a desk
AI illustrationConceptual still life; it does not depict a real family, culture or place.

Practical route

Three steps for responsible work

Begin with context, record decisions and preserve each person’s right to revisit the terms.

Clear Explanation

Use language and a format the participant understands. Explain audiences, publication channels, licence, duration of use, and how to ask questions.

Granular Choices

Offer separate choices for name, text, audio, video, and open access. Declining one format should not automatically mean declining all formats.

Record and Update the Decision

Record the form version, date, and agreed restrictions. Describe the available process for changing or withdrawing consent without promises the system cannot fulfil.

Small lock, blank permission card, and a closed archival folder
AI illustrationConceptual still life; it does not depict a real family, culture or place.

Working checklist

What to check before moving on

  • Obtain consent before recording or receiving materials.
  • Separate permissions for text, audio, and video.
  • For children, include both representative permission and the child's assent.
  • Do not send personal information to AI services.

Both photographs on this page are unique object-based AI illustrations. They do not depict real people, traditions or places.

FAQ

Common questions

Is verbal consent sufficient?
Follow the project's approved process and document consent in an appropriate form, considering applicable requirements.
May a participant's name be published?
Only when the participant explicitly chose attribution and it does not conflict with recorded restrictions or data protection requirements.

Have experience or expert insight?

Tell us how you could contribute. Material is published only after rights, sources and consent have been reviewed.